Agradecimentos: GF is the author of the study protocol and responsible for reporting the results. CL and MO were the principal investigators. CL, RB, GF and MO interpreted data and reviewed the manuscript. All authors read and approved the final version of the paper. Cristiane Aoqui Guenoub provided...

Agradecimentos: GF is the author of the study protocol and responsible for reporting the results. CL and MO were the principal investigators. CL, RB, GF and MO interpreted data and reviewed the manuscript. All authors read and approved the final version of the paper. Cristiane Aoqui Guenoub provided medical writing on behalf of Springer Healthcare. This manuscript was prepared according to the International Society for Medical Publication Professionals' Good Publication Practice for Communicating Company‐Sponsored Medical Research: the GPP3 Guidelines

The international Haemophilia Experiences, Results and Opportunities (HERO) study assessed the psychosocial aspects of life for people with haemophilia (PWH) and their caregivers in several countries. Brazil was not included in this initiative. An observational, multicentre, cross-sectional study...

The international Haemophilia Experiences, Results and Opportunities (HERO) study assessed the psychosocial aspects of life for people with haemophilia (PWH) and their caregivers in several countries. Brazil was not included in this initiative. An observational, multicentre, cross-sectional study was performed involving PWH (moderate-to-severe haemophilia) and their caregivers, from November 2014 to July 2015. The primary objective was to quantify the extent of the primary psychosocial factors affecting PWH in their everyday life. Descriptive statistics and comparisons between Brazilian and global respondents are presented. A total of 100 adult male PWH and 100 caregivers (responding on behalf of their oldest affected child aged <18 years) completed the survey. Sixty-eight per cent of the PWH had haemophilia A without inhibitors. Chronic pain and hepatitis C were the most common conditions related to haemophilia. On the EQ-5D assessment, 64% of PWH reported extreme/moderate pain. Treatment for depression or anxiety was reported by 18% of PWH and by 29% of caregivers. There was a lower employment rate for PWH in Brazil, compared to the countries included in the original HERO survey (51% vs 60%); 71% of PWH stated that haemophilia has a negative impact on their work. Over the previous 5 years, 58% of PWH and 68% of caregivers did not have difficulties in obtaining the concentrated factor for treatment. Our study presents an overview of the psychosocial aspects of life with haemophilia in Brazil, providing a basis for health policy decisions and may further improve comprehensive care for PWH

Fechado